One of the first things my stoma nurse said to me before my surgery was “you won’t be disabled but you can use disabled toilets.” And that has kind of stuck with me. I am not disabled. At least by the definition whoever decides that in my country. The politics of disability are vast and complicated. In the last 6 months I’ve learned so much but barely scratched the surface. I want to emphasise that I’m just going to beView Post
I wrote this blog at the beginning of June and meant to post it but then I had an unexpected hospital visit. But reading it over, I still want to post it. Now that I’ve had another surgery I probably shouldn’t beat myself up as much about being unproductive. I’m back in recovery again, I’m allowed to have lie ins and play video games all day. But I know that sooner or later I’ll start to feel like I shouldView Post
Before you ask, we’ve still not moved into the new flat. Fingers crossed for July! But here’s what happened in June. I spent a week in hospital and had surgery…again I explain everything that happened in this video but yes you heard right. Another surgery. I was in hospital between 10th-18th June and my surgery was on the 13th (just one day before my 5 month 1st surgery anniversary). This was totally unexpected and basically took over the rest ofView Post
And so continues the monthly round ups. This is what happened in May. Traveling for the first time since surgery! For 3 weeks of May I was out of the country. I kind of went all or nothing. First trip away from home, away from my boyfriend, away from London since everything that happened… sure I’ll go away for THREE WHOLE WEEKS. I spent 2 wonderful weeks in Los Angeles which I vlogged for your viewing pleasure! And then oneView Post
My body will never be the same again. I will always have a scar line stretching two-three inches above and below my belly button. My belly button will always be a different shape. Even if I don’t have the stoma forever, I will have another scar in its place. And I will never have a large intestine again. That, I will never get back. On 14th January I had life altering surgery because of a severe flare up of ulcerativeView Post
